janehughes2013

A long overdue update

I know, I know, I haven’t posted a blog for absolutely ages! Before getting back into blogging I wanted to do a quick update. My MS is now Secondary Progressive. To help with this change I now have a mobility scooter and stair lift. I struggled with accepting both of these into my life (especiallyContinueContinue reading “A long overdue update”

Santa Visit at Beale Park

Over the years our Christmas Santa visits have ranged from garden centres, to small theme parks and to farm centres. This year we decided to meet the big guy at Beale Park, a wildlife park in South Oxfordshire. We have visited Beale Park many times and have always enjoyed this lovely setting. After entering theContinueContinue reading “Santa Visit at Beale Park”

Current MS Journey – part 2

Soon after my meeting with the consultant in Jan 2022 I had an MRI on my brain and spine. This brought the results that there were no new lesions on my brain. This was good news but due to the new symptoms of spasticity, which had been with me for over two years, the SecondaryContinueContinue reading “Current MS Journey – part 2”

Helpful tips I’ve picked up over the years of being a stay at home mum

Clean the bath when you are in the shower No more leaning over the bath and easier to get access to the shower for rinsing. Similaly, clean the rest of the bathroom while the children are in the bath and need watching. Hoover the living area of your house every day High traffic areas getContinueContinue reading “Helpful tips I’ve picked up over the years of being a stay at home mum”

Menopause and MS

For a couple of years now things have been changing with me. Depression, mood changes, bad sleep pattens, weight gain. I blamed it all on Multiple Sclerosis and my worsening condition. However, it wasn’t until I experienced some seriously late periods (which were very scary!!) and regular hot flushes that I started to realise thatContinueContinue reading “Menopause and MS”

Butlins 2022

Butlins has been a part of our family life for many years now. It began with taking our 3-year-old daughter to a Butlins Just for Tots break and now, seven years later, we go every year for a five-day easter holiday. Butlins offers so much entertainment and fun (not to mention the cooking and cleaningContinueContinue reading “Butlins 2022”

Current MS Journey – part 1

Since the initial few years after my diagnosis my state had been quite constant. Around the time of my last consultant appointment in 2013 I had a young baby and my MS was in a good state. It was difficult to keep getting myself and a colicky baby into Oxford.So, my consultant decided that unlessContinueContinue reading “Current MS Journey – part 1”

Tripping through fast setting concrete…after running a marathon.

This description isn’t actually a bizarre turn in my daily life activities but is how my MS has felt for the last 18 months. Spasticity, a common MS symptom, is affecting my legs. The definition of the word describes how it is “abnormal muscle tightness due to prolonged muscle contraction. It is a symptom associatedContinueContinue reading “Tripping through fast setting concrete…after running a marathon.”

Beautiful Days 2021

So, after booking tickets to this wonderful festival in 2019 we eventually made it there in 2021. The global pandemic meant that no gatherings took place until a vaccine had come about. When I had my vaccines a large reason for my happiness, you know apart from the health and contributing to the recovery ofContinueContinue reading “Beautiful Days 2021”

Pilates

As the saying goes “you only miss the things you no longer have” and this has been true with me when it has come to exercise. Losing the ability to run, cycle and doing very active aerobics has meant that my choices of exercise options have become limited. After reading about the positive effects PilatesContinueContinue reading “Pilates”